Jakarta , this dancer has appeared in various video clips belong to famous musicians such as The Spice Girls . But who would have thought he recently caught a rare disease that is incurable once stung by bees and can only survive with a transplant organ .
" When I cough or chest infection , sometimes I had to call my mom and tell her that the cough can last for weeks . , But he would only say it was normal . Now I know it was because we were suffering from the same disease , " Clare said Fray , as reported by the Daily Mail , Thursday ( 12/02/2014 ) .
Clare added a long time the cough is gone but he claimed never even to the doctor to check what happened . So far Clare just feel that, no other complaints .
Until the end of two years ago there was a bee sting incident . " At that time I was sorting through my old costume when suddenly there was a bee stung my finger . Would I know her condition worse because I also suffer from allergies . Later my tongue swelled for no apparent reason and my doctor said it was due to an allergic cleaning products or fungus , " he explained .
Initially by the mother Clare was given an antihistamine to relieve the effects of a bee sting . But when his tongue began to swell and a rash on his neck , they decided to go to the nearest clinic .
" They watched me and decided to give me a shot of adrenaline because I look weird breath . Afterwards I felt like taking bottles of energy drinks , " said the 44-year -old woman .
Clare was taken to the Alexandra Hospital , Redditch and was hospitalized overnight because he was suspected of having an allergy to bees . However immunology expert who examined precisely locate other irregularities in blood samples Clare .
" They gave me an EpiPen . Because I never injected adrenaline my body is so dependent on him when I was stung again . However when I test them , the percentage of allergic bees just 0.001 percent . In other words I am not allergic to bees at all , " he said .
Having investigated more in depth then found out if blood antitrypsin deficiency Clare , a protein made in the liver and protects the lungs from damage . This new and he knew after years of symptoms are seen but never he is oblivious .
A rare genetic disease that attacks the Clare called ' alpha - 1 antitrypsin deficiency ' or deficiency of alpha - 1 protein antitripsi . Unfortunately, apart from incurable in most patients , a hereditary disease that can cause damage to the liver and lungs are so severely that can only be overcome by organ transplantation .
The problem in the case of Clare , as a dancer , he spent more time in bars or nightclubs filled with cigarette smoke , so the risk of damage to the lungs increases.
But when Clare underwent a series of tests at the Queen Elizabeth Hospital to determine the severity of the Alpha - 1 diidapnya , a team of doctors unbelievable shock to see the condition of lung women who had worked with singer Kylie Minogue 's choreographer .
It turns out that Clare should have suffered lung damage that actually have lungs that are very healthy .
" Although I spent a lot of time in nightclubs , which of course is very bad for people with Alpha - 1 , but my body always fit and dancing help maintain my health , " he said happily .
Clare needs to be done now is just to keep her body in order to stay fit and healthy life . In addition, the mother of three children also actively joined with Alpha - 1 group Alliance to campaign on his condition as well as encouraging the addition of facilities for people with Alpha - 1 to the NHS .
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